Families Wanted for International Study on Long-Term Impact of Childhood Lung Disease

Parents and caregivers of children born preterm are being invited to take part in an important international research project exploring the long-term effects of Bronchopulmonary Dysplasia (BPD), also known as chronic lung disease of prematurity.

The BronQ Family Study aims to assess how BPD impacts the health-related quality of life of children and their families over time. Researchers hope the findings will help improve care, support, and services for families worldwide.

BPD is a serious condition that can develop in babies born too soon, especially those who required oxygen or ventilation after birth. However, researchers stress that families of children who experienced breathing difficulties – even without a formal BPD diagnosis are also encouraged to take part, as their experiences are just as valuable to the study.

Who can participate?
Parents or primary caregivers are eligible if their child:
– was born preterm,
– has been discharged from their initial hospital stay after birth,
– and is currently under 18 years old.

Participation involves completing an anonymous online questionnaire about the family’s experiences and challenges.

By taking part, families will contribute to vital research that could shape future understanding, resources, and healthcare for children affected by prematurity-related breathing difficulties.
For more information or to participate, please click here.