Ellie Lee Forrest’s Story

In loving memory of Ellie Lee Forrest., daddy and I love you so much Ellie.

Baby Ellie Warburton 2Baby Ellie Warburton 1






At 28 weeks gestation, Ellie was diagnosed with the rare condition, Autosomal Recessive Polycystic Kidney Disease. It affects approx. 1 in 20,000 babies and not only damages the kidneys, but also the liver, spleen, lungs and in Ellie’s case, the heart. She fought until 35 weeks, when she was born and lived for 40 of the most beautiful hours of our lives.

In that short time, she taught us how precious life is and made mine and Lee’s world so perfect and complete. We were lucky to have those hours before she passed away in mummy’s arms and we wouldn’t have had that time if it wasn’t for the SCBU at the RVI.  Tiny lives works hard to support the SCBU and we are eternally grateful for all the care we received.

Daddy and I love you so much Ellie, and will think about you every minute of every day. We are so proud of you and can’t wait to see you again. Stay kissy-licious for us, love Mummy and Daddy x

Ellie’s parents chose to fundraise for Tiny Lives

A JustGiving page was set up in loving memory of Ellie.