Leighton’s Christmas Story

This Christmas, we’re happy to share Leighton’s Christmas story with you! Leighton spent time on Ward 35 over Christmas 2023 after being born at just 1lb 1oz and spending 22 weeks on the unit. Leighton’s Mam, Sam, has shared her experience of spending time on the unit over the festive period and how Tiny Lives supported their family during Leighton’s various treatments during and after his stay.

Sam said, “From the second Leighton was born I felt immense love and fear all at once. He was wheeled past me and I got to feel his tiny little fingers, he grasped my finger and I just sobbed but the team at Tiny Lives were a god send. The first time we heard of them was to give us a parent pack and a sibling pack for his sister. She was over the moon her brother had given her a present and it kept her entertained with colouring and creating gifts to keep as she gets older.

The book explaining what it’s like to have a sibling in the NICU was a brilliant addition and I know Maddie really benefited from this, she took it to school to share her story.The parent pack was well thought out, especially the travel cups – we definitely got their wear out of them. We were quickly introduced to Julie the Social Worker, she worked alongside us for the whole 22 weeks supporting us with the parking permit and funding for fuel. It was something we didn’t have to worry about anymore – we had enough going on. Then we met the psychologist Bridie, I was a bit skeptical at first I didn’t know how I would feel talking to someone as my emotions were all over the place but she was brilliant! We had weekly chats, she gave me some excellent advice and just listened when I needed someone.

The physiotherapist Claire was fantastic. She worked with Leighton on a regular basis but also worked with me so I knew how to execute these exercises effectively with Leighton. Sometimes you just need to know you’re on the right path and doing what you can, Claire always gave me that confidence. Since coming home we have had regular check ins with many of the Tiny Lives staff, they are part of our journey. We LOVE our ArtVenturers class for all our NICU babies. It’s so nice not having to explain anything but chat about our experiences. I find it really useful seeing children who are older and how far they’ve come.

Today Leighton loves spending time with his big sister, his smile radiates when he sees her. He loves new experiences and takes it all in. His favourite hobby is going to Art Venturers – the paint is his absolute fave! He loves getting into mischief and eating!”

This year over 40 babies will be spending their first Christmas on the neonatal unit here in Newcastle.

At Tiny Lives we believe in celebrating every milestone of the neonatal journey and, with your support, we aim to fill every day of the year with moments of joy that parents can treasure. This Christmas, give a gift that makes a difference to premature and sick newborn babies and their families by donating via the link below.