Parent Experiences wanted for Regional Webinar

The webinar is aimed at medical professionals and will be taking place in September (exact date TBC). The webinar will focus on the scenario of a baby born in the region who has an undiagnosed congenital heart defect and will discuss the whole process of caring for that baby.

The organisers of the webinar are keen to ensure that the parent voice is heard in this session, and so are looking for a short story from a parent regarding their whole experience; from delivery of the baby to eventual treatment at Newcastle’s Freeman Hospital. The organisers are looking for a parent with a baby who:

  •  Was born with an undiagnosed congenital heart defect.
  • Was born in the North East or North Cumbria
  • Was eventually treated (or is undergoing ongoing treatment) at the Freeman Hospital in Newcastle-upon-Tyne.

The organisers understand that this is an sensitive and emotional topic, so will be there to support you in telling your story.

To volunteer, or for more information, please email

Thank you!